BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: An electronic Delphi study Journal Article
| Authors: | Cheung, C. K.; Miller, K. A.; Goings, T. C.; Thomas, B. N.; Lee, H.; Brandon, R. E.; Katerere-Virima, T.; Helbling, L. E.; Causadias, J. M.; Roth, M. E.; Berthaud, F. M.; Jones, L. P.; Ross, V. A.; Betz, G. D.; Simmons, C. D.; Carter, J.; Davies, S. J.; Gilman, M. L.; Lewis, M. A.; Lopes, G.; Tucker-Seeley, R. D. |
| Article Title: | BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: An electronic Delphi study |
| Abstract: | Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity. |
| Keywords: | adolescent; young adult; neoplasm; neoplasms; oncology; patient participation; survivorship; medical oncology; delphi study; delphi technique; humans; human; aya; patient engagement; real-world evidence; bipoc |
| Journal Title: | Future Oncology |
| Volume: | 20 |
| Issue: | 9 |
| ISSN: | 1479-6694 |
| Publisher: | Future Medicine |
| Date Published: | 2024-03-01 |
| Start Page: | 547 |
| End Page: | 561 |
| Language: | English |
| DOI: | 10.2217/fon-2023-0771 |
| PUBMED: | 38197386 |
| PROVIDER: | scopus |
| PMCID: | PMC10988539 |
| DOI/URL: | |
| Notes: | The MSK Cancer Center Support Grant (P30 CA008748) is acknowledged in the PDF -- Source: Scopus |
