A call to action: Antiracist patient engagement in adolescent and young adult oncology research and advocacy Review
| Authors: | Cheung, C. K.; Tucker-Seeley, R.; Davies, S.; Gilman, M.; Miller, K. A.; Lopes, G.; Betz, G. D.; Katerere-Virima, T.; Helbling, L. E.; Thomas, B. N.; Lewis, M. A. |
| Review Title: | A call to action: Antiracist patient engagement in adolescent and young adult oncology research and advocacy |
| Abstract: | Amidst the concurrent global crises of coronavirus disease 2019 (COVID-19), uprisings against Anti-Black racism and police brutality, as well as anti-Asian racism and violence, the field of medicine found itself simultaneously called upon to respond as essential workers in the public health devastation of COVID-19, and as representatives of healthcare institutions wrought with the impacts of systemic racism. Clinicians, researchers, and advocates in adolescent and young adult (AYA) oncology, must come together in authentic activism to begin the work of creating structural change to advance antiracist approaches to patient engagement in AYA oncology research and advocacy. Critical review of existing practices is needed to ensure that ethical and effective research methods are employed when engaging with racial and ethnic minority AYA patients with cancer, who may be particularly vulnerable and exploited in the current context. © 2021 Future Medicine Ltd.. All rights reserved. |
| Keywords: | adolescent; adult; young adult; review; cancer patient; methodology; demography; oncology; cancer research; patient participation; education; community; interpersonal communication; social aspect; awareness; racial disparity; ethnic group; socioeconomics; african american; social psychology; psychosocial; asian; clinical outcome; racism; research methods; patient advocacy; human; adolescent and young adult oncology; aya; patient engagement; pcori; racial/ethnic minority; coronavirus disease 2019; covid-19; childhood adversity; antiracist; patient centered outcome |
| Journal Title: | Future Oncology |
| Volume: | 17 |
| Issue: | 28 |
| ISSN: | 1479-6694 |
| Publisher: | Future Medicine |
| Date Published: | 2021-10-01 |
| Start Page: | 3743 |
| End Page: | 3756 |
| Language: | English |
| DOI: | 10.2217/fon-2020-1213 |
| PUBMED: | 34263658 |
| PROVIDER: | scopus |
| DOI/URL: | |
| Notes: | Review -- Source: Scopus |
