Genetic discrimination: International perspectives Journal Article


Authors: Otlowski, M.; Taylor, S.; Bombard, Y.
Article Title: Genetic discrimination: International perspectives
Abstract: Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal phenomenon. It is defined as the differential treatment of asymptomatic individuals or their relatives on the basis of their real or assumed genetic characteristics. This article presents an overview of GD within the contemporary international context. It describes the concept of GD and its contextual features, reviews research evidence regarding people's experiences of GD and the impact of GD within a range of domains, and provides an overview of legal and policy responses to GD that have emerged globally. We argue that GD is a significant and internationally established phenomenon that requires multilevel responses to ensure social justice and equitable outcomes for all citizens. Future research should monitor GD and its impacts within the community as well as institutions and should evaluate the effectiveness of legislative, policy, community education, and systemic responses. © 2012 by Annual Reviews. All rights reserved.
Keywords: law; policy; impact; strategies; responses; stigmatization
Journal Title: Annual Review of Genomics and Human Genetics
Volume: 13
ISSN: 1527-8204
Publisher: Annual Reviews  
Date Published: 2012-09-01
Start Page: 433
End Page: 454
Language: English
DOI: 10.1146/annurev-genom-090711-163800
PROVIDER: scopus
PUBMED: 22607273
DOI/URL:
Notes: --- - "Cited By (since 1996): 2" - "Export Date: 14 February 2013" - "CODEN: ARGHC" - "Source: Scopus"
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  1. Yvonne Bombard
    12 Bombard