Authors: | Pentz, R. D.; Cohen, C. B.; Wicclair, M.; DeVita, M. A.; Flamm, A. L.; Youngner, S. J.; Hamric, A. B.; McCabe, M. S.; Glover, J. J.; Kittiko, W. J.; Kinlaw, K.; Keller, J.; Asch, A.; Kavanagh, J. J.; Arap, W. |
Article Title: | Ethics guidelines for research with the recently dead |
Abstract: | The objective of the multidisciplinary expert Consensus Panel on Research with the Recently Dead (CPRRD) was to craft ethics guidelines for research with the recently dead. The CPRRD recommends that research with the recently dead: (i) receive scientific and ethical review and oversight; (ii) involve the community of potential research subjects; (iii) be coordinated with organ procurement organizations; (iv) not conflict with organ donation or required autopsy; (v) use procedures respectful of the dead; (vi) be restricted to one procedure per day; (vii) preferably be authorized by first-person consent, though both general advance research directives and surrogate consent are acceptable; (viii) protect confidentiality; (ix) not impose costs on subjects' estates or next of kin and not involve payment; (x) clearly explain ultimate disposition of the body. © 2005 Nature Publishing Group. |
Keywords: | review; united states; consensus; practice guideline; death; medical research; research; organization; community; informed consent; autopsy; guidelines; cost benefit analysis; ethics; confidentiality; ethics committees, research; prospective payment; biomedical and behavioral research; death and euthanasia; ethical review |
Journal Title: | Nature Medicine |
Volume: | 11 |
Issue: | 11 |
ISSN: | 1078-8956 |
Publisher: | Nature Publishing Group |
Date Published: | 2005-11-01 |
Start Page: | 1145 |
End Page: | 1149 |
Language: | English |
DOI: | 10.1038/nm1105-1145 |
PUBMED: | 16270065 |
PROVIDER: | scopus |
DOI/URL: | |
Notes: | --- - "Cited By (since 1996): 23" - "Export Date: 24 October 2012" - "CODEN: NAMEF" - "Source: Scopus" |