CTDataHub: An empowering solution for health data workers in oncology clinical trials Conference Paper


Authors: Kim, B. Y.; Yuravlivker, L.; Buckley, M.; Bouvier, N.; Lengfellner, J.
Title: CTDataHub: An empowering solution for health data workers in oncology clinical trials
Conference Title: Designing Interactive Systems 2024 (DIS 24)
Abstract: Clinical Research Coordinators (CRC) are the backbone of clinical trials, conducting extensive data work to support the clinical research team. Existing clinical systems, optimized for document management rather than clinical research, offer limited capabilities to support the CRCs' workflow, making data retrieval laborious and error-prone. CTDataHub is an information system designed through participatory design with the CRCs at a large academic medical center to address these challenges and empower them as data workers. This study discusses the impact that CTDataHub had on the CRCs' data management experience based on the preliminary findings from surveys and group interviews. © 2024 ACM.
Keywords: clinical trial; clinical research; health; information services; medical applications; electronic health records; healthcare; information management; search engines; electronic health record; health information systems; health information system; electronic health; health records; medical information systems; data work; ehr; future of work; information use; future of works
Journal Title Proceedings of the 2024 ACM Designing Interactive Systems Conference
Conference Dates: 2024 Jul 1-5
Conference Location: Copenhagen, Denmark
ISBN: 979-8-4007-0632-5
Publisher: Assoc Computing Machinery  
Date Published: 2024-01-01
Start Page: 199
End Page: 203
Language: English
DOI: 10.1145/3656156.3663701
PROVIDER: scopus
DOI/URL:
Notes: Source: Scopus
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  1. Nancy Bouvier
    70 Bouvier
  2. Michael Thomas Buckley
    11 Buckley
  3. Bo Young Kim
    3 Kim