Beyond translation: Transcreation of a clinicians’ guide to structure discussions about health-related values with Latinx patients throughout cancer Journal Article

   

Authors:	Nelson, J. E.; Gonzalez, C. J.; Alvarado, A.; Costas-Muniz, R.; Epstein, A. S.; Hoque, A.; Gany, F. M.
Article Title:	Beyond translation: Transcreation of a clinicians’ guide to structure discussions about health-related values with Latinx patients throughout cancer
Abstract:	Objective: This study aimed to ensure accurate translation and cultural appropriateness of a guide designed to help oncology clinicians provide person-centered care to Spanish-speaking Latinx patients with cancer. Methods: Initial translation of a clinician-patient values discussion guide in open-ended question format (“Guide”) was pretested in interviews with 27 Spanish-speaking individuals, followed by national expert panel review. At three sites, semi-structured, in-depth, audio-recorded interviews in the participant's preferred language (Spanish/English) were then conducted with Latinx patients receiving systemic treatment for a solid tumor malignancy and family joining them at clinic. Results: Interviews of 43 patient/family participants representing diverse Latinx communities addressed the Guide's understandability, acceptability, relevance and responsiveness. Rapid analysis of interviews contributed to cultural adaptation/transcreation of the Guide for a pilot interventional trial. Conclusion: Moving beyond translation to transcreation can help promote inclusion, equity, and cultural sensitivity in oncologic care/communication. Practice implications: Clinicians now have a linguistically- and culturally-adapted guide including questions and prompts to help structure discussions in Spanish or English of health-related values with Latinx patients receiving oncologic care. © 2023 Elsevier B.V.
Keywords:	neoplasms; quality of life; health communication; translating; ethnic minorities; decision making, shared; culturally competent care; hispanic or latino
Journal Title:	Patient Education and Counseling
Volume:	120
ISSN:	0738-3991
Publisher:	Elsevier Ireland Ltd.
Date Published:	2024-03-01
Start Page:	108100
Language:	English
DOI:	10.1016/j.pec.2023.108100
PUBMED:	38104422
PROVIDER:	scopus
PMCID:	PMC11019714
DOI/URL:	https://www.scopus.com/inward/record.uri?eid=2-s2.0-85180493824&doi=10.1016%2fj.pec.2023.108100&partnerID=40&md5=f7121b94407fcb133fb7d2266e413cc3
Notes:	The MSK Cancer Center Support Grant (P30 CA008748) is acknowledged in the PDF -- Corresponding author is MSK author: Judith E. Nelson -- Source: Scopus

https://synapse.mskcc.org/synapse/works/has_related_data_chk/212305