Tailoring nutrition and cancer education materials for breast cancer patients Journal Article
| Authors: | Melnic, I.; Alvarado, A. E.; Claros, M.; Martinez, C. I.; Gonzalez, J.; Gany, F. |
| Article Title: | Tailoring nutrition and cancer education materials for breast cancer patients |
| Abstract: | Objective: Many breast cancer patients are vulnerable to poor nutritional status and may benefit from nutrition education, but existing materials are not generally tailored to the needs of low-literacy immigrant and minority patients. Methods: With nutritionist guidance, we developed a nutrition presentation for breast cancer patients. English- (n = 29) and Spanish-speaking (n = 19) patients were recruited from 5 safety-net hospitals, an academic cancer center, and a Latina cancer support organization. Materials were tested using multiple rounds of cognitive interviewing (with an adapted USDA interview guide), followed by study team reviews and modifications, until saturation. Results: Seven rounds of interviews per language were needed. Approximately 25% of interviewees had less than a high school education. Changes included adapting to regional lexicons and resolving vague/confusing phrasing. Specific food examples needed cultural tailoring. Text color coding (red/bad, green/good) was requested. Labeled images enhanced participants’ understanding of concepts. Spanish speakers expressed a desire to understand nutrition labeling, and this was emphasized in the Spanish slides. Conclusion: Cognitive interviews were an important tool for creating a nutrition curriculum tailored to the needs of low-literacy, mostly immigrant patients. Practice implications: Cultural and linguistic factors should be considered for nutritional education materials in diverse patient populations. © 2021 |
| Keywords: | adult; clinical article; controlled study; cancer patient; nutritional status; breast cancer; image analysis; breast neoplasms; cancer center; education; curriculum; interview; language; comprehension; hispanic; book; vulnerable population; hispanic americans; nutrition; patient; minority groups; minority group; coding; emigrants and immigrants; concept analysis; cultural competency; nutrition education; cultural competence; immigrant; human; female; article; literacy; audiovisual aid; safety net hospital; cognitive interview; illiteracy; nutrition labeling; spanish (language) |
| Journal Title: | Patient Education and Counseling |
| Volume: | 105 |
| Issue: | 2 |
| ISSN: | 0738-3991 |
| Publisher: | Elsevier Ireland Ltd. |
| Date Published: | 2022-02-01 |
| Start Page: | 398 |
| End Page: | 406 |
| Language: | English |
| DOI: | 10.1016/j.pec.2021.05.040 |
| PUBMED: | 34140197 |
| PROVIDER: | scopus |
| PMCID: | PMC8636528 |
| DOI/URL: | |
| Notes: | Article -- Export Date: 1 March 2022 -- Source: Scopus; Author Carlos Gonzalez is listed as Javier Gonzalez in the publication. |
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