Informing, reassuring, or alarming? Balancing patient needs in the development of a postsurgical symptom reporting system in cancer Conference Paper


Authors: Ancker, J. S.; Stabile, C.; Carter, J.; Chen, L. Y.; Stein, D.; Stetson, P. D.; Vickers, A. J.; Simon, B. A.; Temple, L. K.; Pusic, A. L.
Title: Informing, reassuring, or alarming? Balancing patient needs in the development of a postsurgical symptom reporting system in cancer
Conference Title: 2018 Annual Symposium of the American Medical Informatics Association (AMIA)
Abstract: After ambulatory surgeries, patients who recover at home have multiple questions about wound healing, symptoms and medication side effects, and recovery expectations. We conducted user testing and rapid application development of a newly developed symptom reporting system that supports home-based recovery by inviting patients to self-report symptoms in the days after surgery and then receive an immediate feedback report giving context for their reported symptoms. Findings showed that some participants primarily valued reassurance, whereas others prioritized receiving alerts about potential problems. Results also showed that most patients wanted feedback framed as comparing their progress to their expected progress, not to that of other patients. The final feedback report provided patients with actionable recommendations, small graphs showing their progress, and with short "gist" text interpretations. The system has been implemented, and recruitment is ongoing for a large clinical trial of its effectiveness for reducing adverse events and unnecessary emergency or urgent care visits.
Journal Title AMIA Annual Symposium. Proceedings
Volume: 2018
Conference Dates: 2018 Nov 3-7
Conference Location: San Francisco, CA
ISBN: 1559-4076
Publisher: American Medical Informatics Association  
Date Published: 2018-01-01
Start Page: 166
End Page: 174
Language: English
PUBMED: 30815054
PROVIDER: scopus
PMCID: PMC6371281
DOI/URL:
Notes: Article -- Export Date: 1 April 2019 -- Source: Scopus
Citation Impact
MSK Authors
  1. Andrea Pusic
    300 Pusic
  2. Andrew J Vickers
    880 Vickers
  3. Jeanne Carter
    159 Carter
  4. Cara Marie Stabile
    26 Stabile
  5. Ling Yun Chen
    23 Chen
  6. Peter D Stetson
    45 Stetson
  7. Brett Andrew Simon
    50 Simon
  8. Daniel Mark Stein
    8 Stein