Including the patient voice in patient-centered outcomes research in integrative oncology Journal Article


Authors: MacLeod, J.; Wolff, E.; McAllister, A.; Mao, J. J.; Garland, S. N.
Article Title: Including the patient voice in patient-centered outcomes research in integrative oncology
Abstract: The objective of this paper is to describe our experience as patient advisors as we work on a Patient-Centered Outcomes Research Institute-funded project, CHoosing Options for Insomnia in Cancer Effectively (CHOICE). The CHOICE Study is a comparative effectiveness trial comparing acupuncture with cognitive behavioral therapy for insomnia in cancer survivors. We describe the composition of the patient advisory panel, the patient engagement process, and our contributions throughout the study, and we highlight some of our successes so far. Our motivation to contribute to the research process and our hopes for the future of patient-centered outcomes research are discussed. © The Author 2017. Published by Oxford University Press. All rights reserved. For Permissions, please e-mail: journals.permissions@oup.com.
Keywords: outcome assessment; outcome assessment (health care); patient care; patient-centered care; alternative medicine; complementary therapies; patient reported outcome measures; patient-reported outcome; procedures; integrative oncology; humans; human
Journal Title: Journal of the National Cancer Institute - Monographs
Volume: 2017
Issue: 52
ISSN: 1052-6773
Publisher: Oxford University Press  
Date Published: 2017-11-01
Language: English
DOI: 10.1093/jncimonographs/lgx008
PUBMED: 29140489
PROVIDER: scopus
PMCID: PMC6061229
DOI/URL:
Notes: Letter -- Export Date: 1 August 2018 -- Source: Scopus
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  1. Jun J Mao
    247 Mao