Agreement between self-reported and register-based cardiovascular events among Danish breast cancer survivors Journal Article


Authors: Langballe, R.; John, E. M.; Malone, K. E.; Bernstein, L.; Knight, J. A.; Lynch, C. F.; Howell, R. M.; Shore, R.; Woods, M.; Concannon, P.; the WECARE Study Collaborative Group; Bernstein, J. L.; Mellemkjær, L.
Contributors: Capanu, M.; Liang, X.; Orlow, I.; Reiner, A. S.; Robson, M.
Article Title: Agreement between self-reported and register-based cardiovascular events among Danish breast cancer survivors
Abstract: Purpose: We examined the degree of over- and under-reporting of cardiovascular diseases (CVDs) among female breast cancer survivors comparing self-reports to diagnostic codes from the Danish National Patient Register (NPR). Methods: The study comprised 357 Danish breast cancer patients from the WECARE study who completed a telephone interview concerning CVDs. Disease diagnoses for these women were obtained from the NPR. Agreement was calculated as the number of diagnoses that were both self-reported and in the NPR divided by (1) number of self-reported diagnoses (over-reporting) or (2) number of diagnoses in the NPR (under-reporting). Results: In total, 68 women reported 96 specific cardiovascular outcomes of which 56 (58%) were found in the NPR. Ninety cardiovascular diagnoses were found in the NPR of which 56 (62%) were specifically reported at the interview. There was 80% agreement as to the occurrence of a cardiovascular diagnosis overall. Of 289 women reporting no CVD, 273 (94%) had no diagnoses in the NPR. Conclusions: Breast cancer survivors seem to report absence of CVD accurately, but they both over-report and under-report specific cardiovascular diagnoses. Using a broader definition of CVDs improves the agreement between self-reported and NPR data. Implications for cancer survivors: Determining how cancer treatments affect the risk of cardiovascular morbidities is essential, and the development of high-quality methods for collecting such data is critical. While self-reported data are adequate for assessing the presence of any CVD condition, medical record review will yield higher quality data on specific CVD conditions. © 2017, Springer Science+Business Media, LLC.
Keywords: validation study; cardiovascular disease; breast cancer survivors
Journal Title: Journal of Cancer Survivorship
Volume: 12
Issue: 1
ISSN: 1932-2259
Publisher: Springer  
Date Published: 2018-02-01
Start Page: 95
End Page: 100
Language: English
DOI: 10.1007/s11764-017-0648-6
PROVIDER: scopus
PMCID: PMC5790612
PUBMED: 28963606
DOI/URL:
Notes: Article -- Export Date: 1 March 2018 -- Source: Scopus
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MSK Authors
  1. Anne S Reiner
    122 Reiner
  2. Mark E Robson
    368 Robson
  3. Irene Orlow
    192 Orlow
  4. Marinela Capanu
    211 Capanu
  5. Jonine L Bernstein
    104 Bernstein
  6. Xiaolin Liang
    41 Liang
  7. Meghan   Woods
    13 Woods