Defining a research agenda for patient-reported outcomes in surgery: Using a Delphi survey of stakeholders Journal Article


Authors: Pezold, M. L.; Pusic, A. L.; Cohen, W. A.; Hollenberg, J. P.; Butt, Z.; Flum, D. R.; Temple, L. K.
Article Title: Defining a research agenda for patient-reported outcomes in surgery: Using a Delphi survey of stakeholders
Abstract: Importance: Identifying timely and important research questions using relevant patient-reported outcomes (PROs) in surgery remains paramount in the current medical climate. The inaugural Patient-Reported Outcomes in Surgery (PROS) Conference brought together stakeholders in PROs research in surgery with the aim of creating a research agenda to help determine future directions and advance cross-disciplinary collaboration. Objective: To create a research agenda to help determine future directions and advance cross-disciplinary collaboration on the use of PROs in surgery. Design, Setting, and Participants: An iterativeweb-based interfacewas used to create a conference-based, modified Delphi survey for registrants at the PROS Conference (January 29-30, 2015), including surgeons, PRO researchers, payers, and other stakeholders. In round 1, research items were generated from qualitative review of responses to open-ended prompts. In round 2, items were ranked using a 5-point Likert scale; attendees were also asked to submit any new items. In round 3, the top 30 items and newly submitted items were redistributed for final ranking using a 3-point Likert scale. The top 20 items by mean rating were selected for the research agenda. Main Outcomes and Measures: An expert-generated research agenda on PROs in surgery. Results: Of the 143 people registered for the conference, 137 provided valid email addresses. There was a wide range of attendees, with the 3 most common groups being plastic surgeons (28 [19.6%]), general surgeons (19 [13.3%]), and researchers (25 [17.5%]). In round 1, participants submitted 459 items, which were reduced through qualitative review to 53 distinct items across 7 themes of PROs research. A research agenda was formulated after 2 successive rounds of ranking. The research agenda identified 3 themes important for future PROs research in surgery: (1) PROs in the decision-making process, (2) integrating PROs into the electronic health record, and (3) measuring quality in surgery with PROs. Conclusions and Relevance: The PROS Conference research agenda was created using a modified Delphi survey of stakeholders that will help researchers, surgeons, and funders identify crucial areas of future PROs research in surgery. © Copyright 2016 American Medical Association. All rights reserved.
Journal Title: JAMA Surgery
Volume: 151
Issue: 10
ISSN: 2168-6254
Publisher: American Medical Association  
Date Published: 2016-10-01
Start Page: 930
End Page: 936
Language: English
DOI: 10.1001/jamasurg.2016.1640
PROVIDER: scopus
PUBMED: 27437666
PMCID: PMC5216456
DOI/URL:
Notes: Article -- Export Date: 3 January 2017 -- Source: Scopus
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  1. Andrea Pusic
    300 Pusic
  2. Larissa Temple
    193 Temple
  3. Wess   Cohen
    8 Cohen