Patient regrets after bilateral prophylactic mastectomy Journal Article
| Authors: | Borgen, P. I.; Hill, A. D. K.; Tran, K. N.; Van Zee, K. J.; Massie, M. J.; Payne, D.; Biggs, C. G. |
| Article Title: | Patient regrets after bilateral prophylactic mastectomy |
| Abstract: | Background: The discovery of a cadre of breast cancer susceptibility genes has resulted in an increase in the number of women seeking information about prophylactic breast surgery, but virtually no large-scale prospective databases exist to assist women considering prophylactic mastectomy. Methods: The authors constructed a National Prophylactic Mastectomy Registry comprised of a volunteer population of 817 women from 43 states who have undergone prophylactic mastectomy. Results: In the registry, 370 women had undergone bilateral prophylactic mastectomy. Twenty-one (5%) women expressed regrets about the procedure. The median follow-up was 14.6 years (mean 14.8 years; range 0.2-51 years). Those with regrets were subsetted into those with major (n = 10) or minor (n = 7) regrets. Regrets were more common in those women with whom discussion about prophylactic mastectomy was initiated by a physician (19/255), compared with patients who initiated the discussion themselves (2/108; P < .05). Conclusions: The overall satisfaction rate of 95% reported here may be explained by the voluntary nature of this registry. The most important factor that predicts an unfavorable outcome following bilateral prophylactic mastectomy is a physician-initiated discussion. |
| Keywords: | adult; treatment outcome; aged; middle aged; patient satisfaction; cancer surgery; major clinical study; genetics; united states; follow-up studies; genetic predisposition to disease; cancer prevention; breast cancer; mastectomy; breast neoplasms; registries; cancer registry; chi-square distribution; emotions; prophylactic mastectomy; humans; human; female; article |
| Journal Title: | Annals of Surgical Oncology |
| Volume: | 5 |
| Issue: | 7 |
| ISSN: | 1068-9265 |
| Publisher: | Springer |
| Date Published: | 1998-10-01 |
| Start Page: | 603 |
| End Page: | 606 |
| Language: | English |
| PUBMED: | 9831108 |
| PROVIDER: | scopus |
| DOI: | 10.1007/BF02303829 |
| DOI/URL: | |
| Notes: | Article -- Presented at the 51st Annual Cancer Symposium of the Society of Surgical Oncology that took place March 26-29, 1998 in San Diego, CA -- Export Date: 12 December 2016 -- Source: Scopus |
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