Identifying and addressing theneeds of adolescents and young adults with cancer: Summary of an Institute of Medicine workshop Journal Article
| Authors: | Nass, S. J.; Beaupin, L. K.; Demark-Wahnefried, W.; Fasciano, K.; Ganz, P. A.; Hayes-Lattin, B.; Hudson, M. M.; Nevidjon, B.; Oeffinger, K. C.; Rechis, R.; Richardson, L. C.; Seibel, N. L.; Smith, A. W. |
| Article Title: | Identifying and addressing theneeds of adolescents and young adults with cancer: Summary of an Institute of Medicine workshop |
| Abstract: | Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short-and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research. |
| Keywords: | adolescent; treatment outcome; young adult; cisplatin; cancer patient; cancer radiotherapy; palliative therapy; patient education; childhood cancer; cancer survivor; health care cost; health insurance; cancer center; cryopreservation; medical education; cardiovascular risk; long term care; psychosocial care; terminal care; lifestyle modification; anthracycline; hearing impairment; patient counseling; health care planning; health care access; economic aspect; mental stress; social psychology; female fertility; health care disparity; adverse effects; fertility preservation; employment; cancer survivorship; workshop; health care need; psychosocial aspects; human; priority journal; article |
| Journal Title: | The Oncologist |
| Volume: | 20 |
| Issue: | 2 |
| ISSN: | 1083-7159 |
| Publisher: | Oxford University Press |
| Date Published: | 2015-02-01 |
| Start Page: | 186 |
| End Page: | 195 |
| Language: | English |
| DOI: | 10.1634/theoncologist.2014-0265 |
| PROVIDER: | scopus |
| PUBMED: | 25568146 |
| PMCID: | PMC4319626 |
| DOI/URL: | |
| Notes: | Export Date: 2 March 2015 -- Source: Scopus |
