Cancer patient and survivor research from the cancer information service research consortium: A preview of three large randomized trials and initial lessons learned Journal Article


Authors: Marcus, A. C.; Diefenbach, M. A.; Stanton, A. L.; Miller, S. M.; Fleisher, L.; Raich, P. C.; Morra, M. E.; Perocchia, R. S.; Tran, Z. V.; Bright, M. A.
Article Title: Cancer patient and survivor research from the cancer information service research consortium: A preview of three large randomized trials and initial lessons learned
Abstract: The authors describe 3 large randomized trials from the Cancer Information Service Research Consortium. Three web-based multimedia programs are being tested to help newly diagnosed prostate (Project 1) and breast cancer patients (Project 2) make informed treatment decisions and breast cancer patients prepare for life after treatment (Project 3). Project 3 also tests a telephone callback intervention delivered by a cancer information specialist. All participants receive standard print material specific to each project. Preliminary results from the 2-month follow-up interviews are reported for the initial wave of enrolled participants, most of whom were recruited from the Cancer Information Service (1-800-4-CANCER) telephone information program (Project 1: n =208; Project 2: n =340; Project 3: n =792). Self-reported use of the multimedia program was 51%, 52%, and 67% for Projects 1, 2, and 3, respectively. Self-reported use of the print materials (read all, most, or some) was 90%, 85%, and 83% for Projects 1, 2, and 3, respectively. The callback intervention was completed by 92% of Project 3 participants. Among those using the Cancer Information Service Research Consortium interventions, perceived usefulness and benefit was high, and more than 90% reported that they would recommend them to other cancer patients. The authors present 5 initial lessons learned that may help inform future cancer communications research. Copyright © Taylor & Francis Group, LLC.
Journal Title: Journal of Health Communication
Volume: 18
Issue: 5
ISSN: 1081-0730
Publisher: Taylor & Francis Group  
Date Published: 2013-05-01
Start Page: 543
End Page: 562
Language: English
DOI: 10.1080/10810730.2012.743629
PROVIDER: scopus
PUBMED: 23448232
PMCID: PMC4242510
DOI/URL:
Notes: --- - "Export Date: 3 June 2013" - "Source: Scopus"
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