Measuring Health-related Quality of Life Outcomes in Head and Neck Reconstruction Journal Article

  


Authors: Albornoz, C. R.; Pusic, A. L.; Reavey, P.; Scott, A. M.; Klassen, A. F.; Cano, S. J.; Cordeiro, P. G.; Matros, E.
Article Title: Measuring Health-related Quality of Life Outcomes in Head and Neck Reconstruction
Abstract: A qualitative study was undertaken to understand the impact of omitted health concepts in existing patient-reported outcome (PRO) instruments for health-related quality of life (HR-QOL) evaluation following head and neck (H&N) cancer reconstruction. Twenty-six patients were interviewed. Patients described a broad range of symptoms. Oral competence, rhinorrhea, facial sensation, smile, vision and eye discharge are missing from existing PRO instruments. Altered appearance was a major stressor; both function and appearance changes had a negative psychosocial impact leading to social isolation and embarrassment. This framework is the foundation for development of a more complete PRO instrument, the FACE-Q Oncology. © 2013 Elsevier Inc.
Keywords: adult; clinical article; treatment outcome; aged; middle aged; patient satisfaction; functional assessment; reconstructive surgical procedures; paresthesia; review; head and neck surgery; outcome assessment; quality of life; outcome assessment (health care); questionnaires; head and neck cancer; head and neck neoplasms; xerostomia; expectation; patient-reported outcomes; reconstruction; speech disorder; visual disorder; qualitative research; social psychology; mouth disease; disability evaluation; eating disorder; facial expression; rhinorrhea; eye discharge; head and neck neoplasms[mesh]; outcome assessment (health care)[mesh]; patient satisfaction[mesh]; qualitative research[mesh]; quality of life[mesh]; reconstructive surgical procedures [mesh]; facies
Journal Title: Clinics in Plastic Surgery
Volume: 40
Issue: 2
ISSN: 0094-1298
Publisher: Elsevier Inc.  
Date Published: 2013-04-01
Start Page: 341
End Page: 349
Language: English
PROVIDER: scopus
PUBMED: 23506775
DOI: 10.1016/j.cps.2012.10.008
DOI/URL:

http://www.scopus.com/inward/record.url?eid=2-s2.0-84875331640&partnerID=40&md5=ed75eb9f4a6574b59c01cc7e5bfdb791
Notes: --- - "Export Date: 1 May 2013" - "CODEN: CPSUD" - ":doi 10.1016/j.cps.2012.10.008" - "Source: Scopus"
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MSK Authors
  1. Andrea Pusic
    299 Pusic
  2. Patrick Lambert Reavey
    5 Reavey
  3. Peter G Cordeiro
    278 Cordeiro
  4. Evan Matros
    179 Matros
  5. Amie Marie Scott
    45 Scott
  6. Claudia Rocio Albornoz Garrido
    33 Albornoz Garrido
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