Issues in pediatric palliative care: Understanding families Journal Article
| Authors: | Bartell, A. S.; Kissane, D. W. |
| Article Title: | Issues in pediatric palliative care: Understanding families |
| Abstract: | While family-centred care has always been part of the rhetoric of hospice and palliative care, few models have been developed that successfully integrate care of the caregivers into the overall schema. Systematic analyses of interventions have failed to produce any demonstrable benefit to families arising from the modern practice of palliative care. This alarming finding constitutes the greatest challenge for the 21st century. Pediatric palliative care may have much to teach in its approach to family care. Family-focused grief therapy is one model, used with both adolescent and adult families, that has promise for the field. The time has surely arrived for palliative medicine to focus on family-based research. © 2005 Centre for Bioethics, IRCM. |
| Keywords: | adolescent; child; preschool child; child, preschool; review; united states; outcome assessment; organization and management; palliative care; palliative therapy; conflict; outcome assessment (health care); health service; cause of death; patient care; psychological aspect; social support; infant; infant, newborn; newborn; communication; patient-centered care; health services research; interpersonal communication; problem solving; philosophy; family therapy; life event; life change events; professional standard; grief; family; pediatrics; professional role; health services needs and demand; philosophy, medical; conflict (psychology); nonbiological model; models, organizational |
| Journal Title: | Journal of Palliative Care |
| Volume: | 21 |
| Issue: | 3 |
| ISSN: | 0825-8597 |
| Publisher: | Centre Recherche Institut Univ Geriatrie Montreal |
| Date Published: | 2005-01-01 |
| Start Page: | 165 |
| End Page: | 172 |
| Language: | English |
| PUBMED: | 16334971 |
| PROVIDER: | scopus |
| DOI/URL: | |
| Notes: | --- - "Cited By (since 1996): 3" - "Export Date: 24 October 2012" - "Source: Scopus" |
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