Authors: | Maloney, E.; Edgerson, S.; Robson, M.; Offit, K.; Brown, R.; Bylund, C.; Kissane, D. W. |
Article Title: | What women with breast cancer discuss with clinicians about risk for their adolescent daughters |
Abstract: | Recorded conversations between women undergoing BRCA genetic counseling with clinicians (N = 16) and follow-up consultation letters (N = 16) were analyzed to determine how and when communicating genetic risk information to women's adolescent daughters is discussed. Themes from conversations included mothers worries about their daughters, perceptions of their daughters coping, educational information, and clinicians willingness or reluctance to communicate directly with daughters about their genetic risk. Letters referred to daughters when informing mothers about autosomal dominant inheritance patterns, psychosocial considerations, and screening recommendations. Results inform the value of educating mothers about how they might discuss these issues with their adolescent daughters. Copyright © Taylor & Francis Group, LLC. |
Keywords: | adolescent; adult; clinical article; middle aged; young adult; genetics; cancer risk; follow up; follow-up studies; genetic predisposition to disease; breast cancer; cancer screening; breast neoplasms; brca1 protein; brca2 protein; time factors; partial mastectomy; communication; consultation; health promotion; coping behavior; genetic risk; professional-patient relations; qualitative research; professional-family relations; genetic testing; social psychology; genetic counseling; autosomal dominant inheritance; video recording; daughters; risk information; daughter; nuclear family |
Journal Title: | Journal of Psychosocial Oncology |
Volume: | 30 |
Issue: | 4 |
ISSN: | 0734-7332 |
Publisher: | Taylor & Francis Group |
Date Published: | 2012-07-01 |
Start Page: | 484 |
End Page: | 502 |
Language: | English |
DOI: | 10.1080/07347332.2012.684855 |
PROVIDER: | scopus |
PUBMED: | 22747109 |
PMCID: | PMC4101534 |
DOI/URL: | |
Notes: | --- - "Export Date: 1 August 2012" - "CODEN: JPONE" - "Source: Scopus" |