The role of power, process, and relationships in participatory research for statewide HIV/AIDS programming Journal Article
| Authors: | Chung, K.; Lounsbury, D. W. |
| Article Title: | The role of power, process, and relationships in participatory research for statewide HIV/AIDS programming |
| Abstract: | This paper presents a case study of a participatory process that was used to understand the needs of persons living with HIV/AIDS in a US state. The case illustrates that participation in a community-based research project is a dynamic phenomenon that must be negotiated among an evolving web of roles and relationships. Using a continuum to model the multiple modes of community participation, we follow the changing nature of participation over the course of a single project. Our analysis illustrates the different levels of participation given by the continuum as well as the dynamic nature of participation. A shared understanding of participation evolves as the roles and relationships of those involved are negotiated and renegotiated. However, lack of reflection over power differentials can lead to disempowering outcomes even after achieving a seemingly participatory process. The case reveals that failing to resolve divergent assumptions about power and purpose can lead to fissures that are difficult to overcome. © 2006 Elsevier Ltd. All rights reserved. |
| Keywords: | nonhuman; united states; human immunodeficiency virus infection; health program; interviews as topic; advisory committees; medical research; public health; cooperative behavior; human immunodeficiency virus; acquired immune deficiency syndrome; acquired immunodeficiency syndrome; needs assessment; hiv infections; north america; power (psychology); hiv/aids; usa; interviews; consumer participation; community-institutional relations; participatory research; power relations; power; community participation; community-based research; ryan white care act; community dynamics; social participation; community health planning; consumer advocacy; decision making, organizational; negotiating; organizational case studies |
| Journal Title: | Social Science and Medicine |
| Volume: | 63 |
| Issue: | 8 |
| ISSN: | 0277-9536 |
| Publisher: | Elsevier Inc. |
| Date Published: | 2006-10-01 |
| Start Page: | 2129 |
| End Page: | 2140 |
| Language: | English |
| DOI: | 10.1016/j.socscimed.2006.04.035 |
| PUBMED: | 16828213 |
| PROVIDER: | scopus |
| DOI/URL: | |
| Notes: | --- - "Cited By (since 1996): 8" - "Export Date: 4 June 2012" - "CODEN: SSMDE" - "Source: Scopus" |
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