Patient-reported outcomes program at scale at a cancer center Journal Article
| Authors: | Polubriaginof, F. C. G.; Lipitz-Snyderman, A.; Chimonas, S.; Kuperman, G. J.; Stetson, P. D. |
| Article Title: | Patient-reported outcomes program at scale at a cancer center |
| Abstract: | PURPOSE Incorporating patient-reported outcomes (PROs) into health care processes can improve engagement with patients; however, adopting PROs at scale is challenging. The aim of this study was to describe the design, development, and adoption at scale of a comprehensive PRO program for standard of care and research at a cancer center. METHODS Requirements for a PRO program were obtained from multiple stakeholders. Components of the program included a governance process to assure a consistent and satisfactory experience for patients completing PRO questionnaires, tools to create and manage questionnaires and related content, methods to send questionnaires to relevant patients at the appropriate time, interactive tools for patients to complete the questionnaires as part of their portal experience, and integration of PRO data into workflows for clinicians. We used descriptive statistics to assess the use of the program from 2016 to 2023. RESULTS From program launch (on February 1, 2016) until December 31, 2023, 189 unique questionnaires were developed (101 for standard-of-care, 70 for research, and 18 for quality improvement). Of the 432,497 unique patients who were assigned at least one questionnaire, 314,685 (73%) completed at least one. Of 5,948,464 questionnaires sent, 3,098,574 (52%) were completed. The median completion time was 2 minutes. CONCLUSION Large-scale adoption of PROs at a cancer center is feasible. Key considerations for success include governance processes, attention to patient experience and clinician workflow, and the ability to manage complex inclusion criteria and timing of delivery of questionnaires. These principles should be disseminated so the full potential of PROs in health care can be realized. © 2025 by American Society of Clinical Oncology. |
| Keywords: | adult; major clinical study; neoplasm; neoplasms; statistics; health care quality; health care; questionnaire; cancer center; family history; diagnosis; health care personnel; cancer care facilities; age distribution; patient reported outcome measures; therapy; patient; patient-reported outcome; patient experience; humans; human; male; female; article; surveys and questionnaires; data warehouse; usability testing |
| Journal Title: | JCO Clinical Cancer Informatics |
| Volume: | 9 |
| ISSN: | 2473-4276 |
| Publisher: | American Society of Clinical Oncology |
| Date Published: | 2025-06-01 |
| Start Page: | e2400253 |
| Language: | English |
| DOI: | 10.1200/cci-24-00253 |
| PUBMED: | 40262062 |
| PROVIDER: | scopus |
| PMCID: | PMC12017341 |
| DOI/URL: | |
| Notes: | Article -- MSK Cancer Center Support Grant (P30 CA008748) acknowledged in PubMed and PDF -- MSK corresponding author is Gilad Kuperman -- Source: Scopus |
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