Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer Journal Article
| Authors: | Maya, S.; Chittem, M.; Chawak, S.; Parker, P. A.; Banerjee, S. C. |
| Article Title: | Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer |
| Abstract: | Caregiving in the South Asian context is often assumed by family automatically for the person with cancer (PWC). In this paper, we applied the disclosure decision-making model (DD-MM) to understand the motives behind cancer prognosis disclosure (or not) by caregivers to the PWC. Fifty caregivers participated in semi-structured interviews; and data were analyzed using Framework Approach. For the disclosing caregivers, some of the themes that emerged were consistent with the DD-MM framework while others were not. In particular, the theme "recipient assessment" was part of the DD-MM framework, while others such as unmet communication needs, caregiver self-reflection, and family support were outside of the framework. In contrast, for the non-disclosing caregivers, the reasons for nondisclosure fit very concisely into the DD-MM framework, particularly with information assessment, recipient assessment, and (non) disclosure efficacy. This study has significant implications for development of communication skills trainings around holding family meetings in India. |
| Journal Title: | Death Studies |
| Volume: | 48 |
| Issue: | 9 |
| ISSN: | 0748-1187 |
| Publisher: | Taylor & Francis Group |
| Date Published: | 2024-01-01 |
| Start Page: | 905 |
| End Page: | 915 |
| Language: | English |
| DOI: | 10.1080/07481187.2023.2293711 |
| PROVIDER: | EBSCOhost |
| PROVIDER: | cinahl plus with full text |
| PMCID: | PMC11186974 |
| PUBMED: | 38117258 |
| DOI/URL: | |
| Notes: | The MSK Cancer Center Support Grant (P30 CA008748) is acknowledge in the PDF -- Corresponding authors is MSK author: Smita C. Banerjee -- Source: CINAHL Plus with Full Text |
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