| Abstract: |
Introduction: Congenital heart disease (CHD) is the most prevalent congenital disability globally. This study aimed to describe parents ' perspectives on fi nancial stressors related to having a child with CHD using a descriptive qualitative approach. Method: Qualitative data were obtained from parents of children with CHD in a cross-sectional web -based survey study. Iterative data analysis was used to develop essential themes that enabled a rich description of 147 parents ' perspectives. Results: Parents identi fi ed fi ve fi nancial stressors: perpetual worries about health insurance, facing the dilemma of " making too much money, " struggling to balance work, worrying over having an emerging adult with CHD, and constant constraints because of fi nancial needs. Discussion: As experts in pediatric care, pediatric advanced practice providers need to work with policymakers to provide further fi nancial assistance and suf fi cient insurance coverage for families that struggle to balance fi nances for the whole family and children with CHD. J Pediatr Health Care. (2024) 38 , 574 - 585 |
