Understanding the role of parents’ information sharing and withholding on emerging and young adults’ caregiving and coping during their parents’ advanced cancer Journal Article
| Authors: | Kastrinos, A.; Bylund, C. L.; Bacharz, K.; Applebaum, A. J.; Fisher, C. L. |
| Article Title: | Understanding the role of parents’ information sharing and withholding on emerging and young adults’ caregiving and coping during their parents’ advanced cancer |
| Abstract: | Emerging and young adult caregivers (EYACs) who provide care to their parents are a hidden, unsupported population of caregivers. Research identifies information sharing or withholding as a key aspect of caregivers’ ability to cope and adjust, which may be especially critical when a parent is diagnosed with advanced cancer. The goal of this study was to examine the impact of parent information sharing/withholding on EYACs’ caregiving and coping experiences. We conducted in-depth, semi-structured interviews with 33 EYACs between the ages of 18–35 who cared for a parent that died of advanced cancer. Interview transcripts were thematically analyzed. Three factors played a role in how parents’ information sharing/withholding affected EYACs’ caregiving/coping: 1) topic, 2) timing, and 3) who is included. Findings highlight the adaptive functioning of parents’ information sharing and negative outcomes associated with information withholding, illustrating how parents’ disclosure decisions function to promote or inhibit EYACs’ care involvement and coping. © 2023 Taylor & Francis Group, LLC. |
| Keywords: | adolescent; adult; young adult; major clinical study; advanced cancer; pancreas cancer; neoplasm; neoplasms; adenocarcinoma; breast cancer; skin cancer; psychology; lung cancer; adaptation, psychological; lymphoma; communication; stomach cancer; information dissemination; interview; caregiver; brain cancer; kidney cancer; esophagus cancer; rectum cancer; qualitative research; bile duct cancer; semi structured interview; psychological adjustment; parents; caregivers; behavioral science; institutional review; child parent relation; demographics; coping; caregiving; social media; humans; human; male; female; article; emotional support; care behavior; obscurantism; parent-in-law; young adult caregiver |
| Journal Title: | Journal of Psychosocial Oncology |
| Volume: | 42 |
| Issue: | 3 |
| ISSN: | 0734-7332 |
| Publisher: | Taylor & Francis Group |
| Date Published: | 2024-01-01 |
| Start Page: | 412 |
| End Page: | 426 |
| Language: | English |
| DOI: | 10.1080/07347332.2023.2276940 |
| PUBMED: | 37929571 |
| PROVIDER: | scopus |
| PMCID: | PMC11070447 |
| DOI/URL: | |
| Notes: | The MSK Cancer Center Support Grant (P30 CA008748) is acknowledged in the PDF. Corresponding MSK author is Amanda Kastrinos -- Source: Scopus |
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