A worksheet to facilitate discussions of values for patients with metastatic cancer: A pilot study Journal Article
| Authors: | Mathis, N. J.; Maya, H.; Santoro, A.; Bartelstein, M.; Vaynrub, M.; Yang, J. T.; Gillespie, E. F.; Desai, A. V.; Yerramilli, D. |
| Article Title: | A worksheet to facilitate discussions of values for patients with metastatic cancer: A pilot study |
| Abstract: | Context: Individual goals and values should drive medical decision making for patients with serious illness. Unfortunately, clinicians’ existing strategies to encourage reflection and communication regarding patients’ personal values are generally time-consuming and limited in scope. Objectives: Herein, we develop a novel intervention to facilitate at-home reflection and discussion about goals and values. We then conduct a pilot study of our intervention in a small population of patients with metastatic cancer. Methods: We first engaged former cancer patients and their families to adapt an existing serious illness communication guide to a worksheet format. We then distributed this adapted “Values Worksheet” to 28 patients with metastatic cancer. We surveyed participants about their perceptions of the Worksheet to assess its feasibility. Results: Of 30 patients approached, 28 agreed to participate. Seventeen participants completed the Values Worksheet, and of those 11 (65%) responded to the follow-up survey. Seven of eleven reported that the Values Worksheet was a good use of time, and nine of eleven would be likely to recommend it to other patients with cancer. Eight of ten reported mild distress, two of ten reported moderate to severe distress. Conclusion: The Values Worksheet was a feasible way to facilitate at-home discussions of goals and values for select patients with metastatic cancer. Further research should focus on identifying which patients are most likely to benefit from the Values Worksheet, and should employ the Worksheet as one tool to facilitate reflection on the questions that arise around serious illness, as an adjunct to serious illness conversations with a physician. © 2023 American Academy of Hospice and Palliative Medicine |
| Keywords: | adult; clinical article; aged; cancer patient; follow up; prospective study; neoplasm; neoplasms; metastasis; health survey; motivation; self report; questionnaire; intervention study; disease severity; feasibility study; physicians; pilot study; pilot projects; communication; psycho-oncology; distress syndrome; physician; interpersonal communication; clinical decision making; family; perception; patient-reported outcome; conversation; adaptation; clinical decision-making; home; humans; human; male; female; article; goals of care; patient engagement; personal value; patient values; serious illness conversations; worksheet |
| Journal Title: | Journal of Pain and Symptom Management |
| Volume: | 66 |
| Issue: | 3 |
| ISSN: | 0885-3924 |
| Publisher: | Elsevier Inc. |
| Date Published: | 2023-09-01 |
| Start Page: | 242 |
| End Page: | 247.e1 |
| Language: | English |
| DOI: | 10.1016/j.jpainsymman.2023.06.004 |
| PUBMED: | 37302532 |
| PROVIDER: | scopus |
| PMCID: | PMC11154586 |
| DOI/URL: | |
| Notes: | Article -- MSK Cancer Center Support Grant (P30 CA0098748) acknowledged in PDF -- MSK corresponding author is Divya Yerramilli -- Source: Scopus |
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25Desai -
36Vaynrub -
49Yerramilli -
23Bartelstein -
2Maya -
15Mathis -
1
Santoro
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