Abstract: |
For patients with serious or life-limiting illnesses, providing high-quality care to reduce burden and distress while improving quality of life throughout the disease course is of the highest importance. Prognostic understanding is a complex, multidimensional construct that has gained increased attention among palliative care researchers and clinicians over the past two decades, particularly for its role in end-of-life decision-making and its impact on patients' psychological well-being. Clinicians and researchers in Western countries are increasingly aware of the complexity and individualized nature of prognostic health information preferences, prognostic understanding, and end-of-life decision-making. This chapter provides an overview of progonstic understanding across various diseases which commonly utilize palliative care, although cancer will be a primary focus as it encompasses a majority of the research literature. It reviews how the construct has evolved, as well as current research into its multidimensional structure. The chapter pays particular attention to the relationship between prognostic understanding and psychological outcomes, coping skills, patient-provider communication, how prognostic understanding may be improved, and cultural nuances in patients' understanding of prognosis. It concludes with recommendations for future directions in both research and clinical practice. (PsycInfo Database Record (c) 2023 APA, all rights reserved) |