"I don't do much without researching things myself": A mixed methods study exploring the role of parent health literacy in autism services use for young children Journal Article
| Authors: | Lindly, O. J.; Cabral, J.; Mohammed, R.; Garber, I.; Mistry, K. B.; Kuhlthau, K. A. |
| Article Title: | "I don't do much without researching things myself": A mixed methods study exploring the role of parent health literacy in autism services use for young children |
| Abstract: | Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2–5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. |
| Keywords: | child, preschool; united states; decision making; health literacy; empowerment; human; multimethod studies; autistic disorder -- diagnosis; autistic disorder -- in infancy and childhood; autistic disorder -- therapy; parents -- education; behavioral (iowa nic) |
| Journal Title: | Journal of Autism and Developmental Disorders |
| Volume: | 52 |
| Issue: | 8 |
| ISSN: | 0162-3257 |
| Publisher: | Springer |
| Date Published: | 2022-08-01 |
| Start Page: | 3598 |
| End Page: | 3611 |
| Language: | English |
| DOI: | 10.1007/s10803-021-05240-0 |
| PROVIDER: | EBSCOhost |
| PROVIDER: | cinahl |
| PMCID: | PMC8873226 |
| PUBMED: | 34435270 |
| DOI/URL: | |
| Notes: | Accession Number: 158060969 -- Entry Date: 20220727 -- Revision Date: 20220728 -- Publication Type: Article; research; tables/charts -- Journal Subset: Biomedical; Peer Reviewed; USA -- NLM UID: 7904301. -- Source: Cinahl |
