Patients', parents', and oncologists' perceptions of informed consent for bone marrow transplantation Journal Article
| Authors: | Lesko, L. M.; Dermatis, H.; Penman, D.; Holland, J. C. |
| Article Title: | Patients', parents', and oncologists' perceptions of informed consent for bone marrow transplantation |
| Abstract: | Bone marrow transplantation (BMT) is gaining increasing acceptance as a therapeutic treatment modality and is being offered to patients even in the early stages of disease in the presence of minimal debilitating symptoms. Despite this, little is known regarding patients' and physicians' perceptions of the process in which informed consent for this controversial and potentially lethal procedure is obtained. Thirty‐nine adult BMT patients and the parents of 61 children undergoing BMT and each of their physicians completed a questionnaire concerning their perceptions of the discussion in which consent for BMT was obtained and their evaluation of the consent document. In addition, the factors influencing patients' and parents' decision to accept BMT and the nature and amount of BMT information retained by patients and parents were assessed. The results indicate that on the whole patients and parents evaluated the BMT consultation and consent document favorably, were motivated by their trust in the physician and their belief in BMT as a cure, retained information regarding major points of informed consent from both the consent document and physician discussion, and had considerable difficulty with recall of the specific toxic side effects associated with BMT. Physicians' perceptions, on the other hand, reflected a less positive view of the extent to which patients and parents were actively involved in the consent process and the readability of the consent document. Perceptions of the informed consent process on the part of oncologist‐investigators and patients which could impede the goals of informed consent and implications for facilitating the process are discussed. Copyright © 1989 Wiley‐Liss, Inc., A Wiley Company |
| Keywords: | adolescent; adult; child; child, preschool; leukemia; methodology; attitude to health; questionnaire; psychological aspect; evaluation; infant; physician-patient relations; medical oncology; new york city; attitude; childhood; informed consent; bone marrow transplantation; decision making; patient counseling; professional-family relations; comprehension; consent forms; theoretical study; parents; survey; disclosure; middle age; memorial sloan-kettering cancer center; transplant recipients; treatment modality; cancer; human; male; female; priority journal; empirical approach; professional patient relationship; support, non-u.s. gov't; clinical approach/source; risks and benefits; parent counseling; autonomous decision‐making; consent document; information assimilation; parental consent |
| Journal Title: | Medical and Pediatric Oncology |
| Volume: | 17 |
| Issue: | 3 |
| ISSN: | 0098-1532 |
| Publisher: | Wiley Liss |
| Date Published: | 1989-01-01 |
| Start Page: | 181 |
| End Page: | 187 |
| Language: | English |
| DOI: | 10.1002/mpo.2950170303 |
| PUBMED: | 2664440 |
| PROVIDER: | scopus |
| DOI/URL: | |
| Notes: | Article -- Export Date: 14 April 2020 -- Source: Scopus |
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