Reducing informal caregiver burden in cancer: Evidence-based programs in practice Journal Article


Authors: Longacre, M. L.; Applebaum, A. J.; Buzaglo, J. S.; Miller, M. F.; Golant, M.; Rowland, J. H.; Given, B.; Dockham, B.; Northouse, L.
Article Title: Reducing informal caregiver burden in cancer: Evidence-based programs in practice
Abstract: Caring for people with cancer can be a burdensome and emotionally straining experience. Without adequate psychosocial support, distressed caregivers are at risk for psychiatric and medical morbidity, which can adversely affect patient outcomes. Although there is a tremendous need to provide effective and timely supportive care services for cancer caregivers, few community or clinically based services exist and the needs of these essential caregivers are profoundly underserved. This article describes three existing evidence-based programs and tools that address the needs of family caregivers of cancer patients: (a) the FOCUS Program, tested for efficacy in prior randomized clinical trials and implemented in community settings by agency staff; (b) the Program for the Study of Cancer Caregivers at Memorial Sloan Kettering Cancer Center (MSKCC), which addresses the needs of caregivers in a large health care system; and (c) CancerSupportSource-Caregiver, an online platform for distress screening and referral developed by the Cancer Support Community to assess and address caregivers' needs. We also describe next steps related to broader dissemination for practitioners considering how best to support cancer caregivers now and in the future. Although each evidence-based program or tool represents a unique approach to supporting caregivers, together these approaches allow for a greater likelihood of meeting caregiver needs across a variety of contexts. Collaboration within and across organizations allowed for the development and effective implementation of each of the described initiatives. (PsycINFO Database Record (c) 2019 APA, all rights reserved)
Keywords: quality of life; psychosocial interventions; distress screening; cancer caregiving; evidenced-based programing
Journal Title: Translational Behavioral Medicine
Volume: 8
Issue: 2
ISSN: 1869-6716
Publisher: Springer  
Date Published: 2018-04-01
Start Page: 145
End Page: 155
Language: English
ACCESSION: 2018-36311-001
DOI: 10.1093/tbm/ibx028
PROVIDER: Ovid Technologies
PROVIDER: psycinfo
PMCID: PMC6257028
PUBMED: 29385550
DOI/URL:
Notes: References -- Source: PsycINFO
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