Group-Based trajectory modeling of distress and well-being among caregivers of children undergoing hematopoetic stem cell transplant Journal Article


Authors: Sands, S. A.; Mee, L.; Bartell, A.; Manne, S.; Devine, K. A.; Savone, M.; Kashy, D. A.
Article Title: Group-Based trajectory modeling of distress and well-being among caregivers of children undergoing hematopoetic stem cell transplant
Abstract: Objective To examine the trajectories of caregiver psychological responses in the year following their child's hematopoetic stem cell transplant (HSCT), and whether cognitive and social processing strategies differentiated between trajectories. Method One hundred and eight caregivers randomized to the control condition of a cognitive-behavioral intervention study completed measures of distress, coping, and social support at baseline, 1 month, 6 months, and 1 year post HSCT of their child. Results The majority reported moderate or low anxiety, depression, or distress that decreased over time, but a small group demonstrated high anxiety, depression, or distress that persisted or increased over time. Maladaptive coping was highest among caregivers in the highpersistent distress subgroup compared with the moderate-decreasing and low-stable groups. Adaptive coping was minimally associated with trajectory subgroups. Conclusions Screening HSCT caregivers for distress and maladaptive coping may be useful in identifying caregivers likely to experience persistently high distress who may benefit from psychological intervention. © The Author 2016.
Keywords: parents; caregivers; distress; behavioral intervention; pediatric transplantation
Journal Title: Journal of Pediatric Psychology
Volume: 42
Issue: 3
ISSN: 0146-8693
Publisher: Oxford University Press  
Date Published: 2017-04-01
Start Page: 283
End Page: 295
Language: English
DOI: 10.1093/jpepsy/jsw064
PROVIDER: scopus
PUBMED: 27543915
PMCID: PMC6074849
DOI/URL:
Notes: Article -- Export Date: 2 June 2017 -- Source: Scopus
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  1. Abraham Bartell
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